I just got back from a trip to Oregon visiting my family and celebrating my grandfather's 90th birthday. We took both Milo and Lula - Milo got a special airport security pat down at SFO and on the way back thanks to the VNS. We also spent a few days at our family beach house which was alot of fun. It wasnt easy traveling with both kids but we did it. I'm exhausted though and hoping that we are staying put for awhile.





We visited Cannon Beach and Seaside, both have changed so much from when I was younger. I forgot how nice the beaches in oregon are - very clean compared to Southern Ca. Seaside still has the arcade games, skee ball and fascination just like i remember. Bruce's candy kitchen in cannon beach still has the best salt water taffy.

Lula is growing so fast - she seems huge to me at just 3 1/2 months and shes doing great. Milo is doing OK, the VNS has helped with the length of his seizures but he still has them daily. On this trip was the first time I felt pity from other people regarding Milo and our situation. It didn't feel good to think that people feel sorry for us, because I don't see Milo that way. He is who he is and I think he has a pretty good life - lot of activities, people who love him. I love Milo and have learned so much about patience, love and my life has just become more real thanks to him.

I suppose the pity is only going to worsen when we get him a wheelchair in a few months so he can go to school. Not sure how I will deal with it but my main feeling is that most people just dont get it, and that sucks. It also doesn't help when people are questioning whether Lula is normal, because all that goes on in my head and I've had her checked out by all of Milo's therapists and his ped and she is fine. I would like those questions to stay thoughts - I don't need to hear it. No need for me to feel more freakish than I already do, thanks.



posted by Liz at 2:25 PM